They cried to You and were saved; in You they trusted and were not disappointed. - Psalms 22:5
God's Miracle of Sebastian

Your Questions Answered

» The Diagnostic Terms
» The Doctors and You
» Options You Have

» What To Expect

The Diagnostic Terms

What do the terms PROM and PPROM mean?
Premature rupture of membranes (PROM) refers to a pregnancy past 37 weeks gestation and preterm premature rupture of membranes (PPROM) is rupture of membranes prior to 37 weeks.

PPROM is associated with 30-40% of preterm deliveries and is the leading identifiable cause of preterm delivery. It occurs in approximately 150,000 pregnancies yearly in the United States.

When PPROM occurs high risks of morbidity are present for both the baby and the mother.

What is Amniotic Fluid?
Fluid that fills the sac surrounding the developing baby
Cushions baby, protecting him
Keeps umbilical cord from reducing supply of oxygen
Allows baby to move around and have properly developed muscles, bones, etc
Helps develop respiratory system, namely the lungs, as baby swallows fluid

What is Anhydramnios?
No amniotic fluid. More danger when occurs in first trimester

What is Oligohydramnios?
Too little or low amniotic fluid
More danger when occurs in first trimester

What is Potter's Syndrome?
Potter's Syndrome is one of several serious or fatal kidney abnormalities. In Potter's (or Potter) syndrome the baby's kidneys do not develop in the first few weeks of life in the womb. The baby's kidneys are essential for the production of amniotic fluid in the womb. If there are no kidneys, there is little or no amniotic fluid (this is known as oligohydramnios) to expand the womb around the baby and to allow the baby to grow and move. The womb remains small and in its confined space the baby's lungs cannot develop properly. Many babies with Potter's syndrome are stillborn. In those who are born alive, the immediate cause of death is failure to breathe (respiratory failure) due to underdeveloped (hypoplastic) lungs, usually one or two days after delivery. Even if this problem is treated the baby cannot survive without kidneys. (Potter's syndrome is also known as Renal Agenesis, which simply means that the kidneys did not develop).

Potter's sequence is the name given to a condition which resembles Potter's syndrome in that although the baby has kidneys, there is little or no amniotic fluid (oligohydramnios). This may sometimes be because the mothers waters have broken in mid-pregnancy, or due to developmental problems in the baby's kidneys or urinary system. In Potter's sequence, as in Potter's syndrome, the baby's lungs are compressed and cannot develop properly. The baby dies of respiratory failure within one or two days of delivery (subnote: although shorter and longer lifespans do exist).

What is Ectoptic Kidneys?
Nonfunctioning or unseen kidneys in baby

What is Abruption?
Placental abruption is the premature separation of a placenta from its implantation in the uterus. Within the placenta are many blood vessels that allow the transfer of nutrients to the fetus from the mother. If the placenta begins to detach during pregnancy, there is bleeding from these vessels. The larger the area that detaches, the greater the amount of bleeding. Placental abruption occurs about once in every 120 births. It is also called abruption placenta

What is a High Risk Pregnancy?
Involves at least one of the following:
- The mother or baby is more likely to become ill or die than usual
- Complications before or after delivery are more likely to occur than usual

Your Baby
- Is unique
- May defy the odds, as many have
- No one can say for sure what the true status is of your baby
- Your baby deserves a chance

The Doctors and You

Go to a perinatologist
A perinatologist is an obstetrical subspecialist trained in the care of the mother and baby at a higher than normal risk for complications.

A neonatologist cares for the baby after birth.

What doctors say
Both perinatologists and neonatologists will predict gloom and doom
Both will likely use phrases like zero percent chance
Many will suggest a therapeutic abortion
Many will paint horrible scenarios, describing infections, abnormalities, no lungs, etc
Find one who will offer hope and stick by you

What you say
Be as prepared for the doom and gloom as you can.
Ask if this doc is a perinatologist, if he will stick by you, if he has hope
Be proactive in your care; learn as much as you can and go in prepared

Options You Have

Read this article by Dr. Bruce Young of New York University

Fluid instillation into the amniotic cavity through a cathter, usually used for observation and not for correction of the problem of low amniotic fluid, not to say that might change and you should not learn more about it.
Learn about discoveries are made daily

Consists of the infusion of platelets and cryoprecipitate into the amniotic cavity
Learn about discoveries are made daily

International research
There is research in this area. Be bold and find a PhD researcher willing to help you. Sebastian's uncle, a PhD researcher at UNC, was a tremendous help to us in finding out about research in Greece, Italy and Belgium.

What You Can Do
- Diet
- Bedrest
- Water
- Cleanliness
- Work
- Support and help
- Attitude and prayer

» What To Expect

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Baby Sebastian
Baby Sebastian

Life Choices Radio Show

Susan Ison speaks about Sebastian's story on Sue Parker's Life Choices radio show, Memphis 640 AM.

Press arrow to the left to play the radio show.


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